https://www.siliconvalley.com/2023/04/27/a-drug-company-abandoned-a-treatment-for-bubble-boy-disease-after-a-5-year-fight-this-little-california-girl-is-about-to-get-it/

Later this spring, a little girl in California who essentially has no immune system will receive a lifesaving treatment for “bubble boy disease” thanks to the persistence of a dogged group of parents, a pediatrician, a veteran newsman and a few episodes of “Grey’s Anatomy.”

Five-year-old Seersha Sulack has the same rare disease portrayed in the 1976 John Travolta movie, “The Boy in the Plastic Bubble.” A germ — even a common cold — could kill her, and so she stays away from anyone outside her immediate family.