A drug company abandoned a treatment for ‘bubble boy disease.’ After a 5-year fight, this little California girl is about to get it
https://www.siliconvalley.com/2023/04/27/a-drug-company-abandoned-a-treatment-for-bubble-boy-disease-after-a-5-year-fight-this-little-california-girl-is-about-to-get-it/
Later this spring, a little girl in California who essentially has no immune system will receive a lifesaving treatment for “bubble boy disease” thanks to the persistence of a dogged group of parents, a pediatrician, a veteran newsman and a few episodes of “Grey’s Anatomy.”
Five-year-old Seersha Sulack has the same rare disease portrayed in the 1976 John Travolta movie, “The Boy in the Plastic Bubble.” A germ — even a common cold — could kill her, and so she stays away from anyone outside her immediate family.
A drug company abandoned a treatment for ‘bubble boy disease.’ After a 5-year fight, this little California girl is about to get it
Apr 27, 2023, 3:18pm UTC
https://www.siliconvalley.com/2023/04/27/a-drug-company-abandoned-a-treatment-for-bubble-boy-disease-after-a-5-year-fight-this-little-california-girl-is-about-to-get-it/
> Later this spring, a little girl in California who essentially has no immune system will receive a lifesaving treatment for “bubble boy disease” thanks to the persistence of a dogged group of parents, a pediatrician, a veteran newsman and a few episodes of “Grey’s Anatomy.”
> Five-year-old Seersha Sulack has the same rare disease portrayed in the 1976 John Travolta movie, “The Boy in the Plastic Bubble.” A germ — even a common cold — could kill her, and so she stays away from anyone outside her immediate family.