Most clinical trial participants find benefits of sharing personal data outweigh risks
https://www.sciencedaily.com/releases/2018/06/180606173747.htm
And despite low levels of trust in pharmaceutical companies, most of those who take part in clinical trials are willing to share their data with drug firms, the researchers found.
The study will be published in the June 7 issue of The New England Journal of Medicine. The lead author is Michelle Mello, JD, PhD, professor of law and of health research and policy. Steven Goodman, MD, PhD, professor of medicine and of health research and policy, is the senior author.